Friday, June 23, 2017

The Waiting Game #FridayReflections

Waiting.  It's the waiting game.

We have played it for years.

Waiting for decisions.  Will "Bil", my autistic brother in law, be accepted for Medicaid, a joint state/local medical program that is the gateway to various services that will help him?

The days pass.  

Uncertainty.

He's rejected.  We reapply.  Another wait.

Finally, good news.

Now that Bil's been accepted for Medicaid:  we apply for a program where Bil can be worked with one on one.  But there's nobody who wants to work with Bil.  These programs find it hard to find workers.  It pays so little, in the high cost of living area where Bil lives at the.

We wait, and wait, and they never find anyone.

Years pass.  More waiting.  More waiting lists.  Waiting lists for housing, a waiting list that is discontinued, and then there is no more waiting list.  And then, there is a list again.  Who knows what is going on?

Will my husband we named as guardian for Bil, who never has had a guardian until now? (yes, but that also put additional burdens on my husband, Bil's oldest brother.    It takes months to gather what is needed.  Finally, the lawyer puts in the application.  Another wait.  And what happens if something happens to Bil's elderly mother, in the meantime?

There is a hearing.  The application is accepted.  But then there is more to wait for.  There always is.

We wait and wait and wait, as the days of our lives tick away.

And now, the United States Senate considers legislation that will cut programs that benefit Bil, and others like him.  We can protest, but, more than that, we must wait, and wait still again.

 “Sometimes waiting is the hardest thing of all.” - Luanne Rice
 
 Blogging for #FridayReflections, 

4 comments:

  1. Yes - I can read your frustration and feel for you ... one just does what one is asked and sincerely hope that the outcome when it comes is what is required to help Bil ... my thoughts - cheers Hilary

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    Replies
    1. Thank you for your continued readership, Hilary. I may be changing some of what I do on this blog starting in July - I hope you like it.

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  2. Its a sad state of the world, there are hardly people even volunteering.
    Best of luck

    Click Here to see what Mrs. Dash Says

    ReplyDelete
    Replies
    1. Yes, DeeDee, sad. Thank you again for your continued following.

      Delete

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